Caregivers Stress and Impact on Family in Paediatric Cancer Care

Abstract

This study aims to assess the psychological stress and family impact experienced by caregivers of paediatric cancer-affected children. Using a qualitative descriptive design, semi-structured interviews were conducted with 110 parents of children undergoing cancer treatment at a tertiary care hospital. The study focused on two key domains: psychological stress and family-social impact. Results revealed that a majority of caregivers experienced emotional challenges such as constant worry (54.5%), sadness (31.8%), anxiety (28.2%), and emotional exhaustion, with 48.2% expressing a strong need for support. Coping strategies varied, with caregivers relying on crying (40.9%), emotional withdrawal (40.9%), practical actions (39.1%), or spiritual practices (20.9%). Physical symptoms of stress included fatigue (34.5%), muscle tension (23.6%), and insomnia (22.7%). Socially, caregivers reported strained relationships with spouses (36.4% felt emotional distance) and increased conflicts with extended family (40.9%). Social isolation was prevalent; 41.8% withdrew from social life and 43.6% struggled to balance caregiving with attention to other children. Most caregivers (87.3%) relied on government support for treatment, and a significant number belonged to low-income (55.4%) and low-education backgrounds. These findings underscore the emotional toll and family disruption caused by paediatric cancer caregiving. The study highlights the urgent need for structured psychosocial interventions, including the role of Medico Social Workers in emotional counselling, caregiver support, and facilitating communication within families. Addressing both psychological stress and social dimensions is essential for improving the well-being of caregivers and ensuring holistic paediatric cancer care..